Sunday, December 18, 2011
A MUST WATCH-my secret- the diagnosis
I saw this video and I couldn't do anything but say "YES" someone knows and can relate to how I feel. This is my testimony and I plan to spread awareness about Multiple Sclerosis. I'm trying to turn something that may not be so great into a Positive. God is good and I will always praise HIM.
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7 comments:
I stumbled upon this video (randomly) today and had the same thoughts as you....I'm pretty much in the same situation with different symptoms and I've been on rebif for a little over a year....I'm still in the process of learning but would like to become an advocate as well.....Good Luck to you!!
Aww Good luck to you too hun! thanks so much for the comment and input. MS is real and effecting more people by the day especially young people. I've been on Avonex for a little over a year, how do you like Rebif? I'm testing to see if I can get the clearance for Tysaibri...Lets keep in contact ok?! :D
We should definitely keep in touch. Like the young lady said I'm TERRIFIED of needles so that part is a day to day struggle for me. Being that I also have a psych background I can 'convince' myself as much as I can convince my clients....Smh. I try to stick to MWF as much as I can. I would Sooo much rather pop a pill or something. LOL! I can't remember if I read it but what are you currently taking and why the switch? Rebif seemed the most simple at the time.
Hey Hun! I'm on Avonex. I'm thinking about doing tysaibri which is once every 4 weeks through an IV. The only thing is the link to PML but I'm being tested for the JC virus in hopes all times are negative so that the chances of getting PML is slim to none. And I have a master's in general psychology :) I plan to get licensed in the next 5 years or so!!! Small world!
Please let me know how the Tysaibri is if you in fact start that treatment. I feel like I could do once a month vs 3x/week. I'll read up on it myself. My Master's is in Juvenile Forensic Psych. I've been out of school a while but I do need to work on licensure in order to move ahead with all I want to do. Seems like we have lots in common!!
Yes we do! the World is Big but still small :D my email is nicolecherise723@gmail.com please email me and we can continue to chat :D Take care!
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